Surgery again. Health update.

Hello my friends. I had posted over on Instagram beforehand but wanted to post on here. This is health stuff so if you don’t like reading about that, feel free to skip it.

Me Directly before surgery

Six days ago I had another surgery. sigh. this one was supposed to be had in 2020, but was canceled due to covid and then pushed off for the craniotomy and radiation. now it’s was time to address it.
of course, i am a high risk case. nothing seems to go easy for me. I had adenomyosis (basically endometriosis but inside the uterus), I also had some endometriosis and one ovary was stuck to my intestine and the other was twisted like a corkscrew. I love looking at medical pictures of my insides (yes I am weird lol) but a few of these made me turn green! my uterus was calcifying, yuk, so it was smashing my bladder and colon. Also I was blessed with a retroverted and reflexed uterus so it was mashed backwards into my intestines and could be the reason my low back hurt so much and sciatica. Needless to say the thing had to go. The inflammation in my body alone was painful. I felt so bloated and 6 months pregnant for many years.

I had a robotic hysterectomy Apr 16. the major problem is that in a robotic hysterectomy, you are almost upside-down for about 4 hrs….. painful for a normal person. dangerous for me with my brain tumor still around my carotid artery and pushing on my brainstem….. that’s a lot of time that blood and pressure to be on that scary area.

I’m tired of surgeries. the brain radiation destroyed my pituitary gland, and thus, I have no hormones going on anyway, I’m medically post menopausal… at 45. I am not able to do hormone replacement therapy because estrogen will causes the remaining tumor to grow.

This was my third stomach surgeries. I have never ever felt such excruciating pain. I’ve had roughly 20 surgeries total in my life. I can’t do any pain meds. not even Tylenol.. even child birth. brain surgery. and a broken ankle were less pain that i felt with this one. I woke up hard. They couldn’t get me to stay awake. I threw up bile (not cool with a stomach surgery), I couldn’t walk on my own and I could barely pee. All 4 criteria for them to keep me…. did they? NO. They sent me hoe in the most unGodly 45 min ride of my life. I was scream crying by the time I got home and I think I remember telling my husband very loudly that I didn’t’ care if I peed right there in front of all the neighbors on the front steps. Oh and the nurse didn’t put my shoes on and it was a thunderstorm I walked to the front door in, in socks, floppy, cold, mushy socks. The below picture is me when I finally got to my bed. the US health system machine is a disgusting money making mess with no compassion Slice, dice, and move you out so the bed is free to the next. I’m sure it will cost 500,000 dollars or more for this surgery.

The first few days I was unable to eat or drink anything and I just laid in bed staring at the walls. My mind was too focused on the sheer pain and I could do nothing else. Reading about the women that went and had a hysterectomy and were just fine, it was a breeze, and back to themselves the next day…. I wanted to punch them, repeatedly (sorry not sorry).

Today is day 6. I know I have a long journey ahead of me to heal with all my issues (15 weeks doc stated). The pain is some less, my incisions are itchy, I’m terribly grumpy and uncomfortable. I hate sleeping on my back and I’m just so over it ALL. Oh, the dissection of my former uterus was all benign, no C word. YAY! that was nice to hear. Oh! and 3 days ago was my 3 year crainiversary. I cannot believe my world was flipped upside down 3 long years ago! No more surgeries for me. I’m done Now time to move forward and heal and do the things I love to do, like sew, embroider, and snuggle my pups.

I am stuck on bed rest the first 8 weeks at least so I am hoping to do some catching up on blog posts and makes I haven’t yet had time to post.

I’m am quite disgruntled about having to miss Me Made May another year (missed in 2021 due to craniotomy) But I’ll be cheering on the sidelines and collecting notes on things to make from all of you!